Publications

Article about the LIFE-DCY study design and methodology

• Egilson, S.T., Ólafsdóttir, L.B., Ingimarsdóttir, S.T., Haraldsdóttir, F., Jóhannsdóttir, Á., Gibson, B.E. og Hardonk, S. (2021). Life quality and participation of disabled children and young people: Design and methods of a transformative study. International Journal of Qualitative Methods, 20, 1–13. https://doi.org/10.1177/16094069211016713

Articles concerning disabled children´s and young people´s quality of life

• Ólafsdóttir, L.B., Egilson, S.T., Árnadóttir, U. & Hardonk, S. C. (2019). Child and parent perspectives of life quality of children with physical impairments compared with non-disabled peers. Scandinavian Journal of Occupational Therapy. 26(7), 496-504. https://doi.org/10.1080/11038128.2018.1509371
• Egilson, S. T., Ólafsdóttir, L. B., Leósdóttir, T. og Saemundsen, E. (2017). Quality of life of high-functioning children and youth with autism spectrum disorders and typically developing peers: Self- and proxy-reports. Autism, 21(2), 133-141. https://doi.org/10.1177/1362361316630881
• Ólafsdóttir, L. B., Egilson, S. T., og Ólafsson, K. (2014). Lífsgæði 8-17 ára getumikilla barna með einhverfu: Mat barna og foreldra þeirra. Uppeldi og menntun, 23(2), 49-69.
• Egilson, S. T., Ólafsdóttir, L. B., Methúsalemsdóttir, H., og Leósdóttir, Þ. (2013). Þýðingarferli og notkun lífsgæðamatslistans KIDSCREEN á Íslandi. Iðjuþjálfinn, 34, 28-33.

Articles concerning disabled children´s and young people´s participation and environment

• Ólafsdóttir, L. B., Gibson, B. E., Hardonk, S. C., & Egilson, S. T. (2024). ‘It is important to be involved’: social participation of autistic children and adolescents in mainstream schools. International Journal of Inclusive Education, 1–15. https://doi.org/10.1080/13603116.2024.2337055
• Ingimarsdóttir, A. S. og Egilson, S. Þ. (2024). “I just want to live my life”: Young disabled people’s possibilities for achieving participation and wellness. Social Sciences, 13(63). https://doi.org/10.3390/socsci13010063
• Ingimarsdóttir, A. S., Björnsdóttir, K., Hamdani, Y. og Egilson, S. Þ. (2023). ‘Then you realise you can actually do it’: Young disabled people negotiating challenges during times of transitioning into adulthood. Disability & Society. https://doi.org/10.1080/09687599.2023.2226317
• Egilson, S. (2022). Use of ethnographic data to critically reflect on disabled children’s participation and their encounters with rehabilitation services. In C. Hayre, Muller, D. & Hackett, P. (eds). Rehabilitation in practice: Ethnographic perspectives (pp.67-82). Springer Nature.
• Snæfríður Þóra Egilson og Sigrún Jónasdóttir (2021). Algild hönnun: Leiðarljós að jafnfræði og tækifærum til samfélagsþátttöku. [Universal design: A guiding light to equity and opportunities for community participation] Tímarit um uppeldi og menntun, 30, 2, 115-133. https://ojs.hi.is/tuuom/article/view/3458
• Egilson, S. E., Jakobsdóttir, G. & Ólafsdóttir, L. B. (2018). Parent perspectives on home participation of high-functioning children with autism spectrum disorder compared with a matched group of children without autism spectrum disorder. Autism, 21, 133-141. doi: 10.1177/1362361316685555
• Egilson, S. T., Jakobsdóttir, G., Ólafsson, K. og Leósdóttir, T. (2017). Community participation and environment of children with and without autism spectrum disorder: Parent perspectives. Scandinavian Journal of Occupational Therapy, 24(3), 187-196. doi.org/10.1177/1362361316630881
• Egilson, S. (2016). Skólaþátttaka fatlaðra nemenda. Viðvera tryggir ekki þátttöku [Being present is not enough: School participation of disabled pupils]. In D. Bjarnason, H. Gunnþórsdóttir & Jónsson, Ó.P. (eds). Skóli margbreytileikans: Menntun og manngildi í kjölfar Salamanca [The diverse school: Education and human dignity after Salamanca] (pp.117-135). Reykjavík: Háskólaútgáfan.
• Jakobsdóttir, G., Egilson, S. T., og Ólafsson, K. (2015). Skólaþátttaka og umhverfi getumikilla barna með einhverfu: Mat foreldra. Uppeldi og menntun, 24(2), 75-97.

Articles in which parents‘ assessment of health and quality of life of disabled children are compared with the assessment of the children themselves

• Hemmingsson, H., Ólafsdóttir, L. B. & Egilson, S. T. (2017). Agreements and disagreements between children and their parents in health-related assessments. Disability and Rehabilitation, 30(11), 1059-1072.

Articles building upon specific theoretical perspectives

• Jóhannsdóttir, Á., Haraldsdóttir, H. & Egilson, S. (2022). The implications of internalised ableism for the health and wellbeing of disabled young people. Sociology of Health and Illness, 44(2), 360-376. https://doi.org/10.1111/1467-9566.13425
• Jóhannsdóttir, Á., Egilson, S.T. & Gibson, B.E. (2021). What’s shame got to do with it? The importance of affect in critical disability studies. Disability and Society, 36(3), 342-357. https://doi.org/10.1080/09687599.2020.1751076.
• Guðrúnar Ágústsdóttir, E., Jóhannsdóttir, Ásta, & Haraldsdóttir, F. (2020). Öráreitni og ableismi: Félagsleg staða ungs fatlaðs fólks í almennu rými. Íslenska þjóðfélagið, 11(2), 3-18.