Welcome to the research project LIFE-DCY
On this page you can find information about the research project that was directed at life quality and participation of disabled children and youth in Iceland. The voices and experiences of the children and youth themselves were in focus.
Life quality and participation of disabled children and youth: a transformative study
This was a transformative study, meaning that we aimed to identify aspects that support or restrict life quality and participation of disabled children and youth in different environments.
We also aimed to use our results to define ways to promote disabled children’s overall well-being and participation at home, school, and in their communities. Information was gathered via various channels such as through surveys, individual and group interviews and participant observations in the children’s homes, their schools and other places that they attend.
Although the project is formally completed the research team continues to publish results, share them with important stakeholders such as scholars, service providers, disabled children and their families and the public.
Who was involved in the research project
Snæfrídur Thóra Egilson, professor at the Centre for Disability Research at the University of Iceland was the principal investigator of this project.
Other investigators were Stefan Hardonk associate professor and Ásta Jóhannsdóttir, assistant professor, and three doctoral students: Linda Björk Ólafsdóttir, Anna Sigrún Ingimarsdóttir and Freyja Haraldsdóttir. Professor Barbara Gibson at the University of Toronto was an external collaborator in the study. The study was conducted in collaboration with the Icelandic State Diagnostic and Counselling Centre and other parties.